Natural History of Netherton Syndrome

Не применимо Прекращено NCT05902663

Кратко

The goal of this non-interventional study (NIS) is to collect real-world data to describe the natural history of Netherton Syndrome (NS).

Clinical Assessment of Severity of Netherton Syndrome (NS) by Ichthyosis Area Severity Index (IASI) at Enrolment, Within 2 Weeks of Enrolment and at 16 and 52 Weeks of Follow-up

At enrolment, 2 weeks after enrolment and at 16 and 52 weeks of follow-up or death, whichever comes first.

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